Every journey starts with a single step. My journey started "officially" in March 2006. I started this blog six years into my journey, I often find myself amazed at how this disease taught me a lot....about me. I find the hot air balloons a perfect representation of my journey, with all it's ups and downs....I still soar.
Friday, August 29, 2008
What a difference.
What a difference two days make. It's been 48 hours since the last steroid infusion. I feel like I'm coming out from the fog. Spent most of today sleeping recovering from 5 days of steroid induced insomnia. The metallic taste is finally gone from my mouth (YEAH) so I can sip lemonade again without tasting dirty pennies! While I'm really weak (I'm using the walker) I physically FEEL better. Those steroid side effects are brutal. I just hope this time it did it's job. Of course, time will tell. I see no improvement with my eye, but I'm fully aware it will take time to see if it worked and time for things to heal. I'm now starting to focus on Texas. I'm nervous about it, but very excited too. I've seen how Dr. Rhodes' treatment program works and I see no reason it won't work for me too. I'm literally counting the days until I go. Of course, I'm well aware that when I return I'm off of UCLA and discussions of Novantrone therapy (which I'm NOT looking forward to), but I'm going to do whatever it takes to get back on my feet again.
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2 comments:
Did your doc offer to taper you off infusion with a few days of prednisone?
No tapering this time. Frankly, I'm glad. No more steroids!
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