Thursday, August 25, 2011

Infusion Day One

Infusion's started. This time I'm only doing 3 days of infusions instead of 5. Thank goodness. I thought it had been longer since my last round of infusions, but found out today the last go around was in April Only 4 months ago :(

Thankfully, my home health nurse was able to get the IV in with only one stick. MUCH better than the 12 of last time. The infusion went well. Tastes terrible as always. Thank goodness for Jolly Ranchers hard candy. Help hide the taste.

Now I have the usual post infusion headache. Don't feel too jacked up. I know that feeling comes later. The steroid fog is already descending as well. I hate this stuff.

Wednesday, August 24, 2011

Another exacerbation

Here I was thinking things were going so well. Actually, they were. Until Saturday when I  started having vision problems and pain in my left eye. I sucked it up and was hoping it would go husband ratted me out to our family Doctor though. Set me up an appointment and in I went. Knowing full well what I would be told.

I have optic neuritis in both eyes. Now waiting to hear from the home health agency to see when they are going to start my infusions. The doc wanted them started today. Doesn't look like that is going to happen. Haven't even heard from the pharmacy regarding IV delivery.

So, I wait.....bad attitude and all

Sunday, August 14, 2011

Still here

Wow. I hadn't realized it had been so long since I blogged. The summer has simply flown by. Fortunately, not too many issues with the MS this summer. )BIG difference from previous summers). I've been staying home with the exception of a planned vacation, so I'm sure it's the air conditioning that made the difference.

Dad is doing better. Made a trip to visit he and mom this summer. While the heat of the mid-west this summer has been hard on him, he's been holding his own.

I hope the summer has been good to all of you. You can continue to follow me on  See you there!