Tuesday, April 28, 2009
Fortunately the CT scan was negative for a tumor (Praise God). However, the neurologist thinks that I have developed to new occipital lesions which are what is causing the field of vision problems I developed this time as was as the increasing issues with the left leg. He also stated the obvious that I have been in a pretty consistent state of decline since last June that the CRABS and steroids can't seem to get control of. So, he is keeping me in the hospital through the entire 6 days of infusions and then sending me to a Rehab facility. He also wants me to go back to UCLA for a medication consult and recommendation. His preference is Tysabri, so we'll see what UCLA says. Now the research regarding the Tysabri begins.