I've been on steroids continuously since April 26th. I think I've tolerated them fairly well. Minimal mood swings and no feeding frenzy's. Of course I've gained a terrible amount of weight that will take me year to get off, if ever. (I've tried not to focus on the weight gain. I can't control it so there is no need to make myself crazy over it).
Between all the new pills I'm swallowing 3-4 times every day and the Rebif (which sucks. Since the exacerbation all the nasty side effects of the Rebif have come back), I think I've been dealing petty well with the steroids. Until last night. I was brushing my teeth, looking in the mirror when I suddenly realized I have that terrible "steroid face". My face is so swollen and puffy. It is WAY beyond fat. I look like someone removed my head and placed a large over ripe cantaloupe in it's place. Perfect. MS so sucks!
3 comments:
Hi Kimberly,
MS really does suck,
Hope things get calmer soon for you.
Love,
Herrad
Ah, the dreaded 'moon face'. you have to laugh at what this disease dishes out. That sounds like a lot of steroids - I'd be more concerned with other, more dangerous, side effects, like developing diabetes, bone loss, etc.
How's the PT going?
It has been a lot of steroids. I'm finally down to 30mg a day. (I was at 100). They are titrating me VERY slowly. I won't be down to 10 mg a day for another month. AT this point I absolutely REFUSE to allow my picture to be taken. I hope this weight starts coming off as soon as the steroids are done!
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