Saturday, June 27, 2009

Pills, Pills and more Pills..........

I've been on steroids continuously since April 26th. I think I've tolerated them fairly well. Minimal mood swings and no feeding frenzy's. Of course I've gained a terrible amount of weight that will take me year to get off, if ever. (I've tried not to focus on the weight gain. I can't control it so there is no need to make myself crazy over it).

Between all the new pills I'm swallowing 3-4 times every day and the Rebif (which sucks. Since the exacerbation all the nasty side effects of the Rebif have come back), I think I've been dealing petty well with the steroids. Until last night. I was brushing my teeth, looking in the mirror when I suddenly realized I have that terrible "steroid face". My face is so swollen and puffy. It is WAY beyond fat. I look like someone removed my head and placed a large over ripe cantaloupe in it's place. Perfect. MS so sucks!


Herrad said...

Hi Kimberly,

MS really does suck,
Hope things get calmer soon for you.

Webster said...

Ah, the dreaded 'moon face'. you have to laugh at what this disease dishes out. That sounds like a lot of steroids - I'd be more concerned with other, more dangerous, side effects, like developing diabetes, bone loss, etc.

How's the PT going?

Kimberly said...

It has been a lot of steroids. I'm finally down to 30mg a day. (I was at 100). They are titrating me VERY slowly. I won't be down to 10 mg a day for another month. AT this point I absolutely REFUSE to allow my picture to be taken. I hope this weight starts coming off as soon as the steroids are done!