Monday, August 31, 2009

Neuro visit this week.

Well, Weds. is the day I see my Neurologist following the fiasco at UCLA. (To which I repeat I shall NEVER return to UCLA. They may be good, but they have grown large enough that the consulting specialist makes you wait 4.5 HOURS after your scheduled appointment to see you then doesn't bother to read your chart before they see you (or they would already know the answers to the questions they are asking). Going to be interesting to see what he says. He sent me there specifically to get the Tysabri referral, then they inform me they aren't in the "Touch Program" so they can't do that. Another waste of time as now I know he'll be sending me somewhere else. I've only been waiting FOUR MONTHS to get on it. go figure.

I've been doing pretty well. At least that's what I tell myself. My biggest challenge is pain. My legs hurt constantly. They feel very heavy and ache, usually waking me several times throughout the night. I have no stamina and forget about being able to be productive for any length of time. My fatigue level is unbelievable. I had my B12 level checked and it's fine. I'm also taking great vitamins, so it's all about the MS.

I'm traveling back to Texas in less than two weeks to have my machine "recalibrated". I'm only staying a week thi time. Wish I could stay longer but a week is all I can do this time around. I'm really looking forward to going. When the machine is calibrated exactly to my body the results are nothing short of remarkable.
I've included the link so you can go check out Dr. Rhodes' web site. The video for his MS work is also on youtube (Can you figure out which patient I am)?

Since I've had so much free time on my hands I've created a youtube site for our dog. Search MegaToonie and she'll pop up. I'm going to try to get more video of her up soon, but she's such a momma's monster that when see shes me, she's at my feet. Not much video to get when she's like that!

Now that blogger has changed it's posting box, where is spellcheck??

Hope you all are doing well. If any of you are on Twitter, I'm there as well code name....Journey with MS.

1 comment:

Herrad said...

Hi Kimberly,
Hope Texas will banish the pain and help you enjoy life more.
You did not put a link to Dr Rhodes but I found him no problem.
Think this is him?