Sunday, August 23, 2009

I'm baaaack!

I think I FINALLY fixed all the problems with my blog. So now it's time the catch up on all the updates!

As you know I had an appointment at UCLA. Which was a bust. My Neurologist sent me there to get the referral for Tysabri so we could get everything started. Well, after waiting 4.5 HOURS past my scheduled appointment time, we were informed that UCLA is NOT a Touch approved center. (The Touch program is the program that all prescribing physicians and infusion centers MUST belong to in order to be able to prescribe and/or infuse Tyabri). Who would have thought UCLA wouldn't be an authorized prescriber. So in effect it was a waste of time for me personally.

I did however, learn that they ARE discovering the subgroups of MS. This means they will be able to identify which treatment works better with each subgroup. So instead of "cookie cutter" treatment, we will receive the treatment that is best for us. So, I was tested for the subgroup they have identified to see if I'm in that group. I should have the results next week.

My mom just left for her trip home. My husband had literally left with her yesterday to take her to the airport when we found out my brother was in the hospital with kidney stones and unable to pass them (still the current situation). Hence, they turned around, we went to the hospital and she stayed and extra day.

I had a wonderful visit with my mom. Actually gave me a few interesting topics for posts which I'll be entering over the next few days.

I hope your all well. I'm hanging in there. Still adjusting to the power chair. It's not quite my friend yet, but I know it will be. It just takes time.

1 comment:

Herrad said...

Hi Kimberly,
Brilliant that you have fixed the problem and its possible to post comments again.
Its late here so just a quick hello.