Accupuncture anyone?

Well, yesterday was treatment number two using accupuncture. I'm actually being treated for a bad back and he's thrown stress in there as well. (Nice fella huh)?

Following the first treatment the pain relief lasted a few hours. Which, believe me, was bliss. The stress relief part made me very relaxed. Until I got home to the denial letter from Social Security (but that was already covered in a previous blog). This time, the pain relief lasted about the same, but the relaxation lasted into the evening. I go back tomorrow for another round.

I talked to the accupuncturist (is that a word?), about my MS. He said there are various things that can be done through accupuncture, in fact he has several MS patients that see him FOR their MS. For now, we're going to concentrate on my back and stress and possibly add MS to the mix at a later date.

So, if you can try it! It really doesn't hurt and it works without any medication side effects! What have you got to lose?

Another drug added

Went to my Neurologist yesterday. Of course he is completely opposed to LDN and started me on Azathioprine. A chemo therapy agent. I'm on a Monday Weds, Fri. schedule so I tarted it last night. I felt a little nauseous  about 2 hours after I took it, but no biggy. Although today I have no desire to eat anything. Weird for me.

I'm still seeing the other Neurologist on the 2nd. It will be interesting to see what he says as he sounds much more progressive about MS than my current Neurologist. It's amazing the difference in the care we receive. It's the luck of the draw. You see a Neurologist and think they would be up on the latest treatments and supportive of them. Not so as I have discovered.

Just shows how important it is that WE keep up on all the latest information and become strong patient advocates for ourselves.

Dear God.......

Dear readers this is very different than the normal blogs I write. I hope I do not offend anyone and if I do.....I apologize.



Dear God,

As you know I received the notification that they denied my SS disability in the mail yesterday and the denial for CALPERS retirement 3 weeks ago. So where are You?  I have always managed to remain faithful and my beliefs strong. However, I feel You have left me alone in the world. A world that is spinning out of control. Again I ask, Where are You? I don't feel Your presence or Your love. I've had to hire an attorney for my retirement and now will have to do so for my ss. I have watched so many friends with MS struggle financially due to not being able to get help in a timely fashion. I paid into the system for 30 years and was denied being told , "Your arms still work". Where were You when that decision was made. I no longer believe that "The lord never gives you more than you can handle". Is there a lesson to be learned? Haven't I been through enough between the MS and the other afflictions You have allowed me to suffer? I have tried so hard to handle things with grace, but I can't any longer, I'm too angry. My question now is.....when is enough enough???

Sunday Morning

I'm enjoying a quiet morning with coffee and a homemade scone. Was up at 5 this morning then went back to bade around 5:30 and slept till 8.  I'm tired today as I over did the last two days, but it's not train wreck fatigue, it's just the kind of tired I think anyone would have after two busy days.

Beginning week three on the LDN still not seeing improvement as far as my MS symptoms, but obviously my energy level is better. However, I'm going to have to learn how to manage the new energy levels so I don't over due. I don't know how far I can push anymore, which is a great problem to have.

I did something stupid yesterday. I was full of energy so my husband helped me out of my wheel chair onto a gardening stool so I could trim the bushes in the front yard. I did great for about 15 minutes then I fell backwards and hit a  small boulder we have in the front yard thankfully I didn't hit my head on it (maybe it would have knocked some sense into me). Didn't seriously hurt myself, but I won't be gardening anytime soon.

I see my Neurologist next week.....I just hope it's not a complete waste of time. Of course he doesn't know that I'm getting a second opinion on the second of April and looking to change Neurologists.

Amazing day

Wow, what a difference a day makes! Today was an AWESOME energy day. It's now 6 p.m. and normally I'm in my pajamas and ready for bed. NOT TODAY!

Today we had new carpet installed and I spent the morning putting all my china etc back in the china cabinet & hutch. Then we took my car to the body shop  (had a little fender bender yesterday, I'm fine), and then rental car place.

When I can home I decided to bake! I made home made scones and now have a pumpkin streusel cake baking in the oven! My husband made the comment that he was glad to have me "back". I can now tell that the LDN is working on my energy level.......I'm thrilled!

LDN First Week

One of the big things I've noticed is my energy level increasing. I now get out of bed in the morning and feel rested instead of fatigued like I did before LDN. I'm also noticing that my energy level is lasting longer. I don't find myself needing a mid morning nap. I still require one in the afternoon but my energy level is better afterwards.

I haven't noticed any changes as far as my MS symptoms, but it's only been a week and a half.  Baby steps, I keep reminding myself. Baby steps.