Tuesday, April 12, 2016

Time goes on......

Wow. I can't believe so much time has passed since my last blog. Still fighting MS, still walking, albeit with a cane. Sometimes I'm in the chair depending on the day.

Since my last entry I've moved across the country. We now live in TN. The weather is better here for me. Yes, it can be humid in the summer, but the temperature is rarely above 90 in the summer. Unlike CA.

I've also been on Copaxone, Tecfidera and Tysabri for my MS. I've become steroid resistant so steroids no long are effective during exacerbations. The most recent drug I was on, Tysabri, was actually one that I did the best on. In the 9 months I was on it I only had one relapse (a nasty bout with optic neuritis). Unfortunately, I've had to discontinue it because I am no JCV positive. So, no were considering Lemtrada. A drug that on the surface sounds wonderful. A five day run of IV medication followed by a YEAR with nothing, then at one year a three day run of the IV medication. Then your done. Finished. No more medication. Sounds like a miracle drug for MS doesn't it?!?! Pffft, until you read the side effects. Unfortunately, it seems that this particular drug is all that's left for me to try. SO, we're researching and waiting to hear from the nurse that will be assigned to me. We haven't made a decision. (I say WE because my husband's input and thoughts are just as important as mine are during this process). I'll keep you posted. Promise. If any of you have tried Lemtrada I'd love to hear from you.

No comments: