Another Leg of the Journey

Ahhhh...the wonderful world of MS. Just experienced another exacerbation and went through a round of 5 doses of IV steroids. Not fun to say the least. I've come out the other side...a bit weaker but without any serious residual neuro effects. It's a no brainer as to what caused this exacerbation. Stress...pure and simple. In the midst of a bathroom renovation that had more problems than not.

I head to Texas on SUnday for medical treatment for my MS and my back. Getting a new machine (New generation) and am looking forward to seeing what kind of difference these treatments make this time around.

Been awhile

Wow. Can't believe how long it's been since my last post. Life has a way of speeding up and moving at warp speed. Things have been going pretty well. My MS has been under control. With the exception of a few bumps in the road (usually during times of stress) things have been pretty steady. Yes, I have to watch how I walk and I certainly have to watch my stress level, but things are GOOD! It's been a few months since my last round of IV steroids and I've lost 26 pounds. WOOT!

Infusion Day One

Infusion's started. This time I'm only doing 3 days of infusions instead of 5. Thank goodness. I thought it had been longer since my last round of infusions, but found out today the last go around was in April Only 4 months ago :(

Thankfully, my home health nurse was able to get the IV in with only one stick. MUCH better than the 12 of last time. The infusion went well. Tastes terrible as always. Thank goodness for Jolly Ranchers hard candy. Help hide the taste.

Now I have the usual post infusion headache. Don't feel too jacked up. I know that feeling comes later. The steroid fog is already descending as well. I hate this stuff.

Another exacerbation

Here I was thinking things were going so well. Actually, they were. Until Saturday when I  started having vision problems and pain in my left eye. I sucked it up and was hoping it would go away......my husband ratted me out to our family Doctor though. Set me up an appointment and in I went. Knowing full well what I would be told.

I have optic neuritis in both eyes. Now waiting to hear from the home health agency to see when they are going to start my infusions. The doc wanted them started today. Doesn't look like that is going to happen. Haven't even heard from the pharmacy regarding IV delivery.

So, I wait.....bad attitude and all

Still here

Wow. I hadn't realized it had been so long since I blogged. The summer has simply flown by. Fortunately, not too many issues with the MS this summer. )BIG difference from previous summers). I've been staying home with the exception of a planned vacation, so I'm sure it's the air conditioning that made the difference.

Dad is doing better. Made a trip to visit he and mom this summer. While the heat of the mid-west this summer has been hard on him, he's been holding his own.

I hope the summer has been good to all of you. You can continue to follow me on HowIfightMS.com  See you there!

busy, busy, busy

Wouldn't it be great if MS took a break when life got tough? We've been dealing with a stressfull family issue for the past 6 months (my pop has been really sick). As if it's not bad enough to deal with that level of stress I had to do my best to conceal my returning MS symptoms from my family. All my family need was to worry about me as well. So, I kept on pushing myself. Past the wall of MS. I think I did fairly well. There was only one day that I was there (in two weeks), that I allowed myself to succumb to the train wreck fatigue that comes with MS. Other than that one day I waited until I got home to really let myself go. I hit the bed and didn't get out of it for three days (other that for a doctor's appointment the day after I got home. I am so tired of MS controlling my life. The meds, the shots, the balance problems, the cognitive issues, the fact that I often have hard time speaking. UGH The list could go on and on.