Infusion Day One

Infusion's started. This time I'm only doing 3 days of infusions instead of 5. Thank goodness. I thought it had been longer since my last round of infusions, but found out today the last go around was in April Only 4 months ago :(

Thankfully, my home health nurse was able to get the IV in with only one stick. MUCH better than the 12 of last time. The infusion went well. Tastes terrible as always. Thank goodness for Jolly Ranchers hard candy. Help hide the taste.

Now I have the usual post infusion headache. Don't feel too jacked up. I know that feeling comes later. The steroid fog is already descending as well. I hate this stuff.

Another exacerbation

Here I was thinking things were going so well. Actually, they were. Until Saturday when I  started having vision problems and pain in my left eye. I sucked it up and was hoping it would go away......my husband ratted me out to our family Doctor though. Set me up an appointment and in I went. Knowing full well what I would be told.

I have optic neuritis in both eyes. Now waiting to hear from the home health agency to see when they are going to start my infusions. The doc wanted them started today. Doesn't look like that is going to happen. Haven't even heard from the pharmacy regarding IV delivery.

So, I wait.....bad attitude and all

Still here

Wow. I hadn't realized it had been so long since I blogged. The summer has simply flown by. Fortunately, not too many issues with the MS this summer. )BIG difference from previous summers). I've been staying home with the exception of a planned vacation, so I'm sure it's the air conditioning that made the difference.

Dad is doing better. Made a trip to visit he and mom this summer. While the heat of the mid-west this summer has been hard on him, he's been holding his own.

I hope the summer has been good to all of you. You can continue to follow me on HowIfightMS.com  See you there!

busy, busy, busy

Wouldn't it be great if MS took a break when life got tough? We've been dealing with a stressfull family issue for the past 6 months (my pop has been really sick). As if it's not bad enough to deal with that level of stress I had to do my best to conceal my returning MS symptoms from my family. All my family need was to worry about me as well. So, I kept on pushing myself. Past the wall of MS. I think I did fairly well. There was only one day that I was there (in two weeks), that I allowed myself to succumb to the train wreck fatigue that comes with MS. Other than that one day I waited until I got home to really let myself go. I hit the bed and didn't get out of it for three days (other that for a doctor's appointment the day after I got home. I am so tired of MS controlling my life. The meds, the shots, the balance problems, the cognitive issues, the fact that I often have hard time speaking. UGH The list could go on and on.

Fire's Back

I take 12 pills a day (Not to mention my shot) to keep my MS symptoms at bay. We'll they aren't working. The neuropathy in my legs (FIRE) is back, my fatigue requires a daily nap and my hands aren't working right. In addition to joint pain (and of course the back pain that I battle on a daily basis due to an injury almost 3 years ago). I'll tell you, life with MS sure isn't for the weak or the faint of heart. The risk of falling flat on your face (literally) is always a possibility as the disease progresses. My wheelchair and walker have become my best friends. Thankfully my human friends have accepted my D.M.E friends and aren't intimidated by them. That makes a world of difference. I've read blogs where people have lost friends because their so called friends can't accept watching them go through the process of MS and using the equiptment. Thankfully, I haven't had that problem. My friends get me out of the house once a week minimum for lunch, dinner etc. They have become pro's at handling my wheelchair and walker.

SO while my symptoms are flaring up I choose to concentrate on the positive.......my wonderful friends who make sure I am STILL able to have a life outside my home.

Been awhile

It's been awhile since I blogged, but life has a way of throwing you curve ball's and making other issues in your life the priority. The last 6 months of 2010 my dad was pretty ill. I spent  a considerable amount of time there during the end of the year.

Then of course, I had an MS flare up in the midst of it all, then I'm still fighting my chronic back pain and jumping through way to many hoops to get it fixed.


I hope you all have spent the last six months in better physical health than I have. I underwent a round of IV steroids as well as steroid eye drops for another round of otic neuritis. Just when I though I had the chair beat, back into I was. (I'm back up to using the walker, but it's iffy most days).

I rarely have a day that I don't have the consious thoughts of MS running through my head. I remember when the symptoms of MS, for me, were so mild that after my daily shot, MS was an after thought. I hope I see those days again!