Monday, October 20, 2008

Texas Bound...again


We're heading back to Texas so my machine can be readjusted for me. Going for a longer period of time this time around. (Hurricane Ike interfered last time). I'm looking forward to the trip. I got SO much pain relief from the machine and was able to sleep. I know I'll get that relief again. My body just got used to the beta waves (which is a GOOD thing) and is ready for the next level. Mark will be going for the first few days then a girlfriend is flying out for the rest of the trip. I can't wait to spend the time with her. Brings back memories of our San Francisco "girl" trip. The zaniest things happen to us. We're like Lucy and...well I was going to say Ethel, but we're more like Lucy and Lucy. I will have my new ultralight custom wheelchair by then as well, which will make it much easier for me to get around in. I coordinated our trip so I won't have to miss next months MS support group meeting. I think the meeting is too important to miss if it can be avoided. Anyway, hubby leaves again this afternoon and I want to spend some time with him. So, I'll blog at you later.

Sunday, October 19, 2008

And the nominee's are:



Here are the instructions I received with my award:


* Put the logo on your blog or post.* Nominate at least 10 blogs which show great Attitude and/or Gratitude!
* Be sure to link to your nominees within your post.
* Let them know that they have received this award by commenting on their blog.
* Share the love and link to this post (Lisa) and to the person from whom you received your award. http://txphoenix.blogspot.com/ MS. Me




The following are my 5 picks of bloggers that showgreat Attitude and/or Gratitude. It was hard to limit it! However, everyone else I would have nominated has already BEEN nominated with the exception of the following five. So, here are my choices. There are so many great MS related blogs out there! I get so much from each one of them.





http://hsfr.blogspot.com/

http://msactivist.blogspot.com/

First Blog Award........


I've received my first Blog Award.....thank you Ms. Me! This is passed on from previous Bloggers to other Bloggers. I can't wait to pass it on! I'll nominate my 10 choices tomorrow. (Although they are are so great I'm sure they have already received theirs)!

Wheelchairs, perks and lemonade


I never thought I'd realize that being in a wheelchair brings "perks", but yup it does. Mark (my wonderful hubby) took me clothes shopping today. I needed an outfit for a birthday celebration this weekend and well as Thanksgiving. All my really "nice clothes" are either more business attire or require hose and heels. (Think dresses and skirts). I didn't want to do "business" for "fun" outings and the holidays, nor do I really want to be sitting in a chair in a dress or skirt. (I'm self conscious enough being in the chair without hearing my mothers voice whispering in my head saying "sit like a lady". Sorry mom, the days of crossing my legs are gone). Plus, socks are a whole lot more comfy than hose! So, the perk of being in the chair this week......I can find TONS of excuses not to have to wear hose and heels! Yeehaw! So, I got my shopping done pretty quickly. Which spared my husband from bleeding from the eyes and ears and being completely traumatized by a prolonged shopping experience. Hey, another perk...hubby HAS to go shopping with me to hold the bags! Gee, I had no idea there were so many benefits to being in a chair. I've decided to try and find a perk a week....and I've already named two! I'm on a roll here. (Which is probably a sign that I'm actually dwelling too much on being IN the chair). Did I mention we ordered my custom chair Friday? I should have in within the next few weeks. It will weigh a good 15 pounds less than the chair I'm using now which is HUGE. It will be a lot easier to maneuver in as well. Hopefully, it will also give me back some of my independence. I can't lift the chair I'm in now to put it in the car. So, I can't go anywhere without Mark. (Not that I mind his company, but it would be nice to be able to run to the store alone). It's amazing how life really DOES go on. We adjust, making lemonade from lemons no matter how how we may fight being given the lemons in the first place. We just have to remember that no matter how challenging/bad today may seem, tomorrow really IS another day and this day will pass. As will it's challenges. So, I'll just sit and quietly sip the lemonade and enjoy life...from my chair.

Friday, October 17, 2008

No Control....and coping


I find my brain often does it's best thinking as I'm lying in bed about to doze off for the night. Last night thoughts of "YOU HAVE NO CONTROL" were drifting through my head. Almost got up to blog, but it's a pain getting in the wheelchair and rolling to the other side of the house to my office. So, the other side of my brain that was trying to sleep, and shut the thinking side up, muttered "forgetta about it" (it's the Italian on my mother's side) and off to sleep I went. Of course, "YOU HAVE NO CONTROL" was the first thought I woke to this morning. Geesh, I either have to blog about that thought or get sucked into a depressive episode as I realize that I have NO CONTROL. I choose to blog, thank you very much.

We each go about our daily lives thinking we are in total control. If I go to work, I'll get my paycheck and pay my bills. We think. (What if your payroll check bounces? Happened TWICE to me in my lifetime). I'll save for retirement and a "rainy day" often doing without to do so. Then we watch our bank go under and the stock market crumble. There went my 401K. Again, no control.

Then, as we're living our lives, loving our families and pets, illness strikes. Not our own, but a beloved pet or family member. All we can do is helplessly stand by and watch. Feeling even more helpless because all we CAN do is pray and give support. Often that doesn't feel half enough. We're frustrated because we CAN'T fix it for them. Again, no control.

If illness strikes us, we have some control. As scant as that control may be. We can control which treatments we take, or not. That's about it. Except for one very important thing. We have TOTAL control over how we choose to react about our circumstances. We can give in, curl up in a fetal position and just give up. OR, we can choose to handle ourselves with as much grace as we can muster. (Sometimes it's not much). I have found, that for me personally, reaching out to others helps me keep my journey with MS in perspective. There are so many folks out there in the world suffering and hurting. Not just because of MS. They have lost loved ones. Whether those loved ones are part of their human or animal family the pain is no less. There are those who have lost their jobs and their homes. Too many families are apart because of war and other hardships. Too many families are torn apart because of ill spoken words and lack of ability to forgive. I thank God I "only" fall into the MSer category. True, I have had some serious struggles related to the MS, and I'm sure I have more ahead. However, it's about perspective and the realization that I have NO CONTROL. I just do the best I can and have a wonderful support network. Instead on focusing on "poor me" I reach out to others who are struggling and hurting. Their pain makes mine pale in comparison. They look at me at can't imagine how I'm coping in the chair. I look at them and can't imagine how they are dealing with the grief of having to put their long time four legged companion to sleep. (Rest in Peace Cody). Or, how they are coping with the loss of their home or job. I keep things in perspective by KNOWING it could ALWAYS be worse. SO, I count by blessings, hug my husband, my old dog and know that while I have no control over what will happen, I can control my reaction and how I cope. I keep a strangle hold on HOPE. I hope for better days for everyone. I hope that one day they will find a cure, not only for MS but for all disease. I pray that one day the world will have peace and that no more families will be separated. The world is such a big place of which I am such a small part. It's not control which keeps us moving forward, but Hope.

Wednesday, October 15, 2008

"Just stay in the chair"

*Clarification* I need to explain WHY I can't have an MRI. I am deaf and have bilateral cochlear implants. The implants in my head have magnets in them. Hence NO MRI's allowed.

Had an appointment with an Orthopedic today about my pelvis. 5 months after my fall I'm still having a lot of pain. What does he say?? "Without an MRI there is nothing I can do for you so just stay in the chair". IS HE FREAKING KIDDING ME?!?! What in the world did MD's do before MRI's? Isn't amazing that they were successfully able to diagnose and treat patients before the MRI was invented? Seriously, that's what he said. So in order to prevent the remake of a scene from the exorcist in his office (you know the scene. The one where Linda's head starts turning and she spews green), he decided to attempt to placate me with an order for a CT scan of the pelvis and a referral to a PAIN SPECIALIST. Ahhhh...the solution for everything. Pop a pill of two and you'll feel better. I don't want to see a pain specialist. How can they even THINK of sending you to a pain specialist when they don't even know what's wrong??? I guess if your doped up enough you won't care. Geesh. "Stay in the chair". Now, I do believe I've heard everything. The only GOOD thing about today....I'm too fired up now to feel sorry for myself!